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Re: Prayers need for my new born son [Re: Mix] #9269139 08/28/13 09:23 PM
Joined: Mar 2011
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etu Offline
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In our thoughts everyday Mix.


Ed
Re: Prayers need for my new born son [Re: Mix] #9270142 08/29/13 02:33 AM
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Fish ZoMbiE Offline
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angel2


Re: Prayers need for my new born son [Re: Mix] #9270714 08/29/13 12:26 PM
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Gonecatching Offline
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GOD be with you in this need we will pray for you, I hope it all turns out good GOD BLESS.

Re: Prayers need for my new born son [Re: Mix] #9277343 08/31/13 04:18 PM
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brandi97 Offline
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Angels: Godspeed to baby Colt and his family for relief, healing and happiness!!!! Colt is my dad's name. Colts seem to be tough guys who can go through some terrible things and still come out ahead! Hang in there tough guy!!


"People don't just bump into each other and have sex. This isn't Cinemax." - Jerry Seinfeld
Re: Prayers need for my new born son [Re: Mix] #9279895 09/01/13 07:01 PM
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Dugie Offline
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Still praying


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Re: Prayers need for my new born son [Re: Mix] #9284655 09/03/13 07:58 PM
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kris48 Offline
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Prayers Sent

Re: Prayers need for my new born son [Re: Mix] #9285614 09/04/13 01:57 AM
Joined: May 2012
Posts: 419
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S S Skeeter Offline
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Prayers sent!


S S Skeeter

Re: Prayers need for my new born son [Re: Mix] #9288566 09/05/13 12:23 AM
Joined: May 2004
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Lakeguide Offline
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I just heard some terrific news!! I wanna let Mix tell it, but prayers work!



www.tawakonifishingguide.com (214)415-0166
YOUTH STATE RECORD STRIPER 16.51# caught with us!






Re: Prayers need for my new born son [Re: Lakeguide] #9288629 09/05/13 12:41 AM
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chrisc/striper express guide service Offline
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Awesome Matt can't wait to hear


Lake Texoma Striper Express Guide Chris Carey
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Re: Prayers need for my new born son [Re: Mix] #9289556 09/05/13 01:06 PM
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Mix Offline OP
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Well we had a biposy last week. At that time the dermatologist told us that what he has looks most like RDEB. RDEB is one of the most severe forms of EB with several sub categories ranging from pretty bad to probably the worst disease out there. Every doctor that has seen him since birth has said this same thing. The way the biopsy works is they rub on the skin and then cut out a chunk and send it to a lab and look at the skin seperation and determine how severe everything is. The doc called back yesterday and said the biopsy didn't show anything and gave us 3 possible reasons why. 1. He said it could have been that he didn't cut deep enough or rub the skin hard enough to cause seperation. But he said he rubbed so hard and cut so deep that his nurse was worried he was really gonna hurt Colt. He said this several times. (So that reason doesn't sound very likely and if he thought this was the case I think he would have ordered another biposy immediately) 2. He said Colt may have a way milder form than we first thought and/or it may be more localized and not going to effect his entire body like first thought. 3. There is something called TBDN which looks like EB but goes away on it's own usually during the first year of life. (The fact that he even mentioned this is surprising since this wasn't even a consideration for the last month). So he told us just to sit tight for the next couple of months and if anything changes let him know. He does want to do another biopsy at some point so he can pinpoint exactly what's going on. If Colt has certain forms of EB there is a 1 in 4 chance future kids will have it and this is the main reason they want to pin it down.

Of course there is always reason number 4 and that is that God is healing him of this and everyone's prayers are working! angel This is what we are praying for and believing! Y'all keep em coming!!

Re: Prayers need for my new born son [Re: Mix] #9289584 09/05/13 01:17 PM
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etu Offline
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That's great news, hopeing for best outcome.


Ed
Re: Prayers need for my new born son [Re: Mix] #9289612 09/05/13 01:29 PM
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PlanoKeith Offline
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Awesome News Mix . God is GREAT!! smile


Keith smile

Re: Prayers need for my new born son [Re: Mix] #9289631 09/05/13 01:36 PM
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RSR Lures Offline
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Originally Posted By: Mix
Of course there is always reason number 4 and that is that God is healing him of this and everyone's prayers are working! angel This is what we are praying for and believing! Y'all keep em coming!!

thumb

Re: Prayers need for my new born son [Re: Mix] #9289653 09/05/13 01:42 PM
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lenahorse Offline
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Mix great news keep I up.

Re: Prayers need for my new born son [Re: Mix] #9289664 09/05/13 01:48 PM
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Capt. Michael Littlejohn Offline
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great news. Keep strong


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